Rare Disease Clinic
The MU Child Neurologic Rare Disease Clinic at the Thompson Center is a University Center for Excellence dedicated to providing exemplary clinical services for rare neurologic disorders. We offer compassionate care and personalized treatment plans to individuals who are likely to develop neurologic-related intellectual and developmental disabilities.
Who is eligible for the Rare Disease Clinic?
This clinic focuses on the care of pediatric patients with rare genetic neurological conditions that impact development.
What can I expect during a Rare Disease Clinic appointment?
Appointments in this clinic typically last around 90 minutes. Providers from several disciplines will rotate into the patient room to discuss new medical concerns and follow up on overall health and wellness.
What providers are involved in the Rare Disease Clinic?
During a Rare Disease Clinic appointment, patients may see providers specializing in:
- Child Neurology
- Developmental Behavioral Pediatrics
- Genetic Counseling
- Social Work
Is the Rare Disease Clinic covered by insurance?
These services are covered by most insurance programs, including Medicaid. Contact your insurance provider for detailed coverage information.
How can I get started?
Fill out our online referral form or ask your pediatrician or specialist if this clinic would benefit your child.